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Written by a NHS patient
16th November 2022


I took my wife to A&E into the second week of a holiday. She has pseudomonas and is considered an expert patient with her care. We informed the staff that she has regular episodes, because she is on immune suppressants. She has a stand-by form and pot to present to the path-lab when she experiences the symptoms (mucus in the nose, tiredness and sweating). She then starts on her stand-by antibiotics to prevent it going on to her chest as the infection spreads rapidly. We made it clear that the infection has gone on to her chest as it hadn't responded to three courses of oral antibiotics (Ciprofloxacin). We advised that her culture test was positive and her record shows that few antibiotics work on it and is susceptible to GENTAMICIN S, CIPROFLOXACIN S and TAZOCIN S. We advised that normal practice when it resisted Ciprofloxacin was to be canulated and have IV Tazocin. After tests, she was sent away with a packet of doxycycline, which is ineffective for pseudomonas. We were disappointed that the doctor refused to acknowledge how her infection is usually treated when it keeps resisting oral antibiotics, and felt she did not receive treatment because we were not from the area. We were treated very well by the nurses. My wife usually has a picc line due to her thin veins after many years of blood tests, not the easiest of tasks, which most would not like to attempt. The young chap who breezed in and canulated her made it look all too easy and was her best experience of a picc line. As her condition worsened after discharge, we had to terminate the holiday early to get home for the correct treatment. Her GP referred her to same day emergency care who started her on IV Tazocin and transferred her care to ICT nurses to administer at home. Pleased to say that after getting back home on the correct treatment, she is recovering nicely.

Recommend
Dignity/Respect
Involvement
Information
Cleanliness
Staff
Safe