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Written by a patient
15th May 2018


I have Ulcerative Colitis 9 weeks ago it was cancelled due to lack of staff. Thankfully was able to get my infusion the following week. Today 15/05 have been here since 7.30 am no meds available told pharmacy opens at 08.00 then updated only to be told that is only opens at 09.00 now09. 30 and just being canulated, certainly hope the infusion arrives. Now canulated 09.50 (second time) lucky. Finding a working scale has also been a challenge. Now being infused with vedolizamab 09.55 now muse arrives to take MSRA swabs. I can only conclude that UC is not a priority in NHS Despite this the service I receive is generally excellent the last two occasions have really undermined my trust in the system to meet my needs. As a tax payer in full-time employment manage to do my day job inspite of limitations driven by UC and would expect the NHS to do theirs in keeping theirs in meeting mine in a punctual manner.

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