St George's Hospital 2017-09-13 Person 1 5 0

Having received late diagnosis of a brain tumour, I was relegated to the neurosurgery dept. of this hospital which has been rated inadequate by the Quality Care Commission. I say relegated because my NHS GP refused me a referral several years prior so I had to go via A and E to get a referral that way. I found the consultant sexist and not a little xenophobic. I am British with a foreign accent and this appeared to concern him. On the very first consultation, my records were "doctored" to say I had been considered for, but refused surgery. This was not true and there followed a year long battle to get the fraudulent entry removed: to no avail. Recently, with the help of the Office of the Information Commissioner, I was able to prove beyond a reasonable doubt this entry was untrue, but the hospital still refused to delete it. For example, the hospital was unable to respond to a subject access request for the proposed treatment plan, records of the risks and/or benefits of surgery as they would have had to have been explained to me, etc. Meanwhile, I am unable to obtain the care I need because I keep having the allegation thrown back in my face that "you refused surgery". The situation is so ridiculous it's obscene - how can this be allowed to happen? Since I cannot trust the consultants, I obtained my own brain scan to try and ascertain how fast the tumour is growing. I needed the previous size from an old nhs scan to be able to compare. I wrote to the surgeon asking for the size and he wrote back and gave me the wrong size, claiming it was significantly smaller than it is. I could prove this because I obtained a copy of the old radiology report under the Data Protection Act. So after I busted him trying to downplay the size, literally within days, I get told a related hospital appointment (for suspected brain fluid leak) has suddenly and coincidentally and inexplicably been put back.............by over 6 months.