St George's Hospital 2022-09-24 Person 1 5 0

I am a relative/carer. We have a genetic disorder , and it can cause mental illness. The first time I had experience of St Georges hospital was Brocton Ward 2003. My eighteen year old relative has epilepsy and suddenly became out of touch with reality. A Dr Muris at the time wrote relative had personality disorder. Relative deteriated, and friends and family said to get relative out of there. After several months, relative had seizure, then referred to neuropyschiatry under another trust . When on Brocton, the staff were indifferent to familiys distress and basically ignored us not bothering with relatives epilepsy medication., Dr Muris would talk to me, and I think she gave in her notice and didnt practise again. Under other trust neuropyschiatry, it was no quick fix, many anti pyschotics were tried, yet it wasnt until relative was put on a drug for treatment resistant schizophrenia that relative got better, with anti convulsants for epilepsy. Relative was initially inpatient at Harplands hospital, neuro behavioural ward, then was an out patient with them, it was out of area ( the difference from St Georges hospital was fantastic, the staff on neuro ward at harplands were amazing and caring ), relatives consultant left nhs and we had problems, where in 2016 our relative was taken off treatment as she was discharged from neuropyschiatry, even though her eeg showed her epilepsy was active. with not been on medication , relative became grossly pyschotically unwell. Unfortunately relative was sent to Brocton ward and they said we are not putting her back on this treatment, we dont want to see the records from last twelve years, we have our own practise. they sent relative to cygnet, coventry, which cqc closed down because of patients deaths. Relative wasnt getting better, for a little while cygnet put relative back on the treatment that kept relative well, Then St Georges social worker, said take no notice of relative, she is not a responsible family. Cygnet took relative off her treatment, and she was injected with all drugs that in the past made her very unwell and didnt work. St Georges said relative couldnt see me, they tried to displace me as nearest relative, Ranjit Mal ,social worker had a lot of power and they just took notice of her. As nearest relative, I got a hearing for my relative, and one of the managers said for goodness sake, get this woman back on her treatment, she was on when under consultant at harplands hospital. St Georges after nine months were going to incarcerate relative with team of carers. they put her back on treatment but also on a lot of a drug that made her shake, they kept me away. I phoned safeguarding to say St Georges hospital hadnt let me see my relative for nine months and she was been emotionally and psychologicaly abused , been ridiculed and not allowed to see me. They discharged my relative then, and within a month she was off the drugs they gave her, which made relative much clearer and her cognition better, yet back on treatment from Harplands hospital . To sum up, the staff at St Georges dont like the patients, because of how patients are,they dont listen to you, ignore you and the patients and the hospital needs investigating. I am not the only one who feels like this, bad pyschiatrists are Dr Kumar and Dr Agell, Dr Grewell not much better. As for the nurses, Rachel Horton seemed to enjoy phoning me , saying you are never going to see your relative again, and dont bother trying to find out how she is as you wont get told. I think I am suffering from PTSD, as I already have physical health issues, this is eating me up. Thankfully , relative on right treatment is doing ok.initially just thankful relative ok, despite what she went through, as she cant remember much of it. This hospital is acute wards, they want a quick fix, if , they either take patient off everything,or go the other extreme, then if no joy, send them hundreds of miles away to private units, who are American. Absolute nightmare.St Georges hospital, and social workers who the pyschiatrists get information from, but not from the patients previous consultant for last twelve years. relative now under pyschiatry and neurology, unfortunately its not combined, but better than when relative under just St Georges hospital. My relative is never ever going back there, I could have got relative back into Harplands and they would have put her back on treatment straight away. St Georges hospital stripped her of her dignity and good reputation, Harplands never did that, they said she has an illness of the brain, on the right treatment she will be fine, and she is.