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14th April 2022


As a carer for the patients, my husband, I saw it Marie Curie nurses over a period of 4/5 days - my husband deteriorated very rapidly - one nurse came 3 times and t was her that I felt more comfortable with in looking after my husband and giving me support.

Suggested improvements
The one thing that needs to be addressed either with yourselves or GPs is that we were not told that as my husband initially wanted to be resuscitated. Hospice at some not 'kick in'. We struggled 48 hours with no palliative nurse or [name removed] nurse and felt abandoned. No one informed us of this until last 4 days o his life.

23rd June 2022
Response from Cynthia Spencer Hospice

Thank you for your feedback and I am sorry that the experience was not as positive as it should have been. Hospice at Home is commissioned to provide support for patients wishing to die at home, there is no restriction in their referral criteria for seeing patients who still wish to be considered for resuscitation. It is through Hospice at Home visiting that sometimes these sensitive conversations can be had and patients may choose to change their mind or they may wish to continue to be considered for active resuscitation. It is unclear as to whether it was the team or the GP who used the term that Hospice at Home would not ’kick in’, we will continue to work with our GP colleagues in ensuring they are updated on the Hospice at Home referral criteria.

Dignity/Respect
Involvement
Information
Staff
Safe
Supported
Spiritual understanding
Cultural needs
Experience