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9th February 2022


I am under the BHRUT fatigue management services with OT Amelia Goldsmith- Lister. The service I received was excellent in terms of content and support. I felt that the care was appropriate and tailored to my needs. It was incredibly helpful to learn about baselines, stress management and to hear other people's experiences and thus feel less isolated.

Suggested improvements
I would like to have more time/ more sessions. I have waited for a very long time for this appointment and there is a DESPERATE lack of M.E/ fatigue services. There is a such a lot of emotion and grief to be held over the AWFUL treatment of people suffering from M.E . This needs space and time and care to be heard. There is SUCH a lot to get through and I needed half hour sessions for my energy levels.

Experience
Dignity/Respect
Involvement
Information
Kindness
Doctor communication
Communication nurse