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Written by a patient
8th January 2016


When I attended my appointment I was greeted by smart and polite staff who were both professional and reassuring. I was seen promptly and given the time I needed to discuss why I was there. Dr Hakim listened to everything that was concerning me and advised me of what to do from there. He gave both private routes and wrote to my NHS doctor advising them of how to follow up. Visiting Dr Hakim has changed my life, for generations my family has suffered numerous issues and now we finally have an answer. Personally I believe it was justified in visiting Dr Hakim privately because of the excellent way both he and his team listened and helped as much as they could. I do however believe the only improvement for me could have been a greater awareness of Ehlers Danlos in the National Health Service. Numerous GPS and an NHS Rheumatologists not only failed to identify that I had this condition over the last 31 years but confessed they did not know enough about it to even know what to do next. It took years of personal research and being treated like I am crazy or imagining problems to get to this point and I feel that without Dr Hakim I would still be living in limbo with no real answers as to why I have the problems I do. I can not express how much I would like to thank Dr Hakim and I have already passed his details across 3 support groups for those with or who believe they have EDS. Thanks again for everything.

Trust
Listening
Recommend