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Written by a NHS patient
13th September 2022


In general Hannah was great and I don't have anything negative to say. One thing I would note though, and I don't wish to lay any blame as it may have been how I communicated, I'm not sure, but my only criticism would be the fact I thought I made it clear right at the beginning just how sensitive I am to stimulants, but I don't feel this was really taken into account when first trialing the medication. As a result, I had a lot of issues with palpitations for a long time on various meds but I don't recall any recommendations being made to try a non-stimulant option (this was only discussed following me requesting this after researching myself) or to slow down the increases of a stimulant option (again this was only discussed after my request). As a result, it has taken almost 2 years to settle onto the same meds we tried in the first place, it simply needed to be done slower due to the sensitivity I seem to have, which was explained at the beginning. As I say, maybe I didn't explain this as clearly as I feel I did, but I just ended up feeling like a massive drain on resources and that I was preventing someone else from getting help because it was taking so long and I feel we could have gotten to this point much quicker if this had of been taken into account. But perhaps the fault is mine and I should have been more forceful in explaining this. The only other thing I would suggest is the fact that when an update form is submitted on the system, the nurses aren't notified of this and a separate case note needs to be made by the patient. Dealing with patients with ADHD, and one of the symptoms of ADHD being a poor working memory, it may be prudent to either find a way of the system notifying the prescribing nurse when a form has been completed or putting something big and bold at the end of the forms to remind patients to send a case note as well as completing the form so this does not get forgotten...just a small suggestion.

Recommend
Trust
Listening