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Written by a patient
27th July 2018


I was given duff advice by the nhs and told it was safe to fly long haul with a brain tumour. This was not true at all, I suffered a micro bleed after a long haul flight due to raised intracranial pressure. The effects were absolutely devastating. I was given dexa injections abroad (nhs refuses to prescribe it) and although it did not resolve the debilitating effects of the microbleed, it kept me as safe as possible on the flight back. I have obtained a supply of dexa in the UK (obviously not from my useless nhs gp) and have been advised to start injecting several days before I fly in future. The side effects are unpleasant, but when you're in a life and death situation, you don't have much choice. I have neutropaenia and multiple auto immune diseases; this drug suppresses your immune system even more so you need to stay away from all possible sources of infection. It lso keeps you awake and makes you sweat.

Effectiveness
Side effects
Understanding
Recommend