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Written by a private patient
22nd April 2024


My gp referred me to this neurologist. I had been having awful, absolutely debilitating pains that had progressed slowly over a couple of years. It started as numbness and warmth in my legs and face and buttocks. It progressed to a level of unbelievable pain, extreme weakness anns pins and needles in my entire body for days at a time. burning over my entire body, my back would feel so so weak as would my legs to the point I can’t even stand. Burning, weakness, a pulsating numbness over my entire body and migraine that would last months with not even a seconds break. I had hoped to be armed with a full mri of my spine for the appointment, but for some reason my doc only issued me to have a lower spinal mri. I left the appointment thinking he seemed better than the reviews I had read. He basically convinced me there are no more tests and that I’ve had them all and since I have symptoms in my hips and legs but the lower mri is normal then it must be unexplainable (or in my head due to trauma in my past- which I don’t have). I have since (about a month later) been diagnosed with 2 syrinx (fluid cysts in my spinal canal) after I pushed my doc to sort me an upper mri. The longer these things are left the more the nerve damage is permanent. Classic symptom's of syrinx are, numbness, weakness, back ache and leg pain, joint pain and headaches. All the symptoms I described to him. . They are most commonly found in the upper back. For 250 quid you think he would have known my symptoms are that of a syrinx and to request an upper mri.my symptoms have progressed so much now I am basically bed bound and in so much pain which may be irreversible. He did some tests when I was there, like my reflexes etc and pin prick tests, and said “there is nothing wrong with my nervous system”. Well, actually there is. And it’s a serious one. For 250 quid for about 20 mins or less you expect no stone to be left unturned. Defo would not recommend unless you like spending money on nothing . A

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