Share review of Norfolk and Norwich University Hospital

Norfolk and Norwich University Hospital 2020-09-08 Person 1 5 0

Had telephone consultation with a Dr Dhatta who is an endocrinologist consultant (due to covid-19) Consultation regarding our child went well up to the point where Dr Dhatta made a point of saying that special feeding measures which he accepted needed to be put in place at our child's then school he was attending may be an inconvience to other pupils. I think it is clear that the then other pupils are not his patients and should figure in his treatment plan for our child. The then school can either cope with the extra identified needs and consider it an inconvenience to themselves and or other pupils.Our child has a definitive genetic diagnosis which was not done by a provincial hospital such as the Norfolk and Norwich. Then had a phone call from a nurse who wanted to advocate doing another genetic test even though he has already got this done. Essentially putting resources to a test for the same thing which is not going to be ofany real clinical benefit to our child Saw a school nurse in February 6 weeks before the lockdown who was questioning the need for his built up shoe and never supplied us with a copy of a necessary care plan while our child is on school premises. This nurse works in association with Riverside/James Paget. Told consultant this and everybody including Norfolk and Norwich don't believe a definitive genetic diagnosis., and want to project this on to the parents. The questioning us as parents about the built up shoe and leg length discrepancy begs and implies that does she think that a Consultant Orthopedic surgeon is just doing unnecessary legs operations and x ray monitoring on our child?. I think the school nurse on this is going outside her qualified remit and projecting this to us as parents, and probably to other health professionals and meddling and for some weird reason meeting with our child and been presented with clinical facts and just not sending out copies of care plans to patients of the Norfolk and Norwich.