Norfolk and Norwich University Hospital
Written by a carer
20th July 2020
Recently had a phone call from a nurse following a telephone consultant appointment ( phone consultation is done presently due to Covid 19 instead of patients attending hospital). The nurse wanted us to agree for our child to have unnecessary tests done, this being a genetic test which has already being done and the result is definitive. She was not able to credibly justify with medical criteria the benefit that this test would have to our child's management and already definitive diagnosis. Also wanting our child to be out through another test as well which is in no way can be considered to be conclusive. Our child is under also another health professional who acts in this way, and wanted our child to be seen by an endocrinologist, in another health authority even though she knew from us that he was already under an endocrinologist at the Norfolk and Norwich.She went and made an appointment for him at the James Paget without telling us.We told our GP and he agreed that it was not appropriate for our child to be seen by two different endocrinologists at two different trust area hospitals, this is also for ethical reasons as well, and the fact the community Paediatrician that made the referral should have told us and that is the way this works.