Leeds General Infirmary 2021-06-11 Person 1 5 0

My daughter aged 10 years, recently had an admission. One nurse declined to assist my daughter Nurse Claire Saddler, when she knocked her cannula out, because she was not on duty. The day staff informed me that Saddler did not hand anything over to them and the first that they new, was when my daughter walked to the nursing station, crying with a bleeding hand. The trust have tried to cover this up by saying that the nurse did hand over the matter. Dr Rumore, a paediatric gastroneterologist, is noted to have lied in her interactions with colleagues and in her documentation. She stated that we could call the hospital if needed out of hours to speak to the consultant; this is documented in the notes and on a recent discharge summary. Yet when we called, she informed the nursing staff that we did not have access to speak with the consultant out of hours and refused to speak with us to treat my child. This is also documented in the notes by the nurse. This information was presented to the trust complaints department but no action has been taken and instead, they stated that it was an error to say we could access necessary medical care out of hours. But the in hours system does not work. I have left multiple messages by telephone and email asking for assistance but had no response. The trust did write and say that they acknowledge this happened but can offer no explanation for the lack of communication or the fact that the clinical team had not responded. Dr Rumore also made other allegations that are unfounded about my family and I, but the trust has not dealt with this either and have closed ranks and appear to be acting to protect themselves medico-legally rather than dealing with failings in patient safety matters that were presented to them. The chief executive Julian Hartley has also been emailed about the issues but we have had no response from him, just ignored. Dr Rumore told me that my daughter has been historically mismanaged/poorly managed by Dr Zamvar. I have been given differing advice and incorrect advice from certain paediatric IBD specialists. The trust have not resolved this matter or put things right for my daughter. Instead, I received a letter from Dr John Oram, stating that no specialist in the IBD team was overseeing my daughter's care due to the ongoing dispute. Instead they had a paediatric surgeon, untrained in IBD medicine direct her care. No respect for patient confidentiality - my daughter's medical notes were left out, fanned for all to see on the ward for over 5 hours. Intimate pictures of her recent colonoscopy were on display for all to see. Disregard for the law - trust refused to release medical records when a subject access request was made, then withheld key pieces of evidence by way of misusing the data protection act. Doctors making arrangement for surgical intervetntions without ensuring consent from parent or guardian with parental responsibility. Doctors covertly arranging investigations without discussion with parents - the doctors have no regard for obtaining consent and appear to act like they are above the law, and even when challenged, the doctors, trust and complaints department perpetuate the same attitude; they appear to think they can act with impunity and disregard the law. Doctors who falsify medical documents, complaints/risk management team who try to cover up errors and also lies in their responses. Breaches of data protection act and confidentiality. BEWARE THE PAEDIATRIC IBD TEAM AT LEEDS GENERAL INFIRMARY - IF YOU WANT TO KEEP YOUR CHILD SAFE STAY AWAY AND GO TO ANOTHER TRUST