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Written by a private patient
16th July 2022


Review - Mr Mohamed Mabrouk at the Spire in Cambridge. My journey for getting diagnosed with Endometriosis has been a bit of a different one. I had heavy periods in my teenage years which looking back were painful but I could function with them. Fast forward to 2016 I began getting strange symptoms as I came off birth control at 20 years old. I started having symptoms that were very similar to a UTI but all bacterial tests and a cytoscopy came back as negative so I was told to get on with it. Over the years my periods became more painful but I could still cope. Then in May of 2020 I began having awful symptoms. My symptoms were really heavy periods, bladder pain, back pain, severe mood swings (the lows left me suicidal), pain every time I had a bowel movement (I couldn't even pass gas without severe stabbing pains that would render me unable to move. My period pain was so intense I did actually believe I was dying the first time so I went to A and E who did agree I was bleeding was too much. They couldn't find my ovaries on the ultrasound and that should have been a warning sign for endo but nobody put it together. I carried on living in fear of my period coming each month. I was using up so many sick days each month as my pain would leave me fainting at work. I honeslty could not do anything but lie in a ball on the floor and crawl to the toilet where I would throw up from the pain. Life was misery. I went to my GP 100s of times about the pain and begging for a smear but they just kept saying I was too young and my periods would settle. That is when I began doing my own research and found the Nook. I went to the GP and presented to them that I might have Endo and would like to be referred to a specialist. My GP refused and promised I'd get the same care locally (and the same hospital what couldn't find my ovaries and sent me home). I carried on researching endo while I waited for my referral to come through and by the time it did I was well clued up about excision and realised the only way to get real help and fast for me was to pay private and see Mr Mabrouk. I enquired with Mr Mabrouks lovely receptionist Rosie (she is brilliant) and she explained I could use my health insurance too for each stage. My health insurance agreed to cover initial consults and diagnostics. I went to Mr Mabrouk for my initial consultation and he was really kind and listened to everything I had to say about pains and did an examination of me where he could see I was in pain being touched. He talked me though all of my diagnostic options and I went with an MRI knowing that was least invasive method and could show if there was extra bits to worry about like Endomitriomas. My MRI results are as below: "The uterus is anteverted and normal in size measuring 60 x 31 x 46 mm. The endometrium is linear and thin measuring 2 mm. The myometrium is unremarkable with no features of adenomyosis or focal fibroid. Both ovaries are displaced posteromedially towards the uterus. Bilateral endometriomas are seen measuring14 mm on the left and 30 mm and 19 mm on the right. Allowing for the degree of movement artefact, there appears to be an endometriotic plaque along the posterior aspect of the cervix down to and including the posterior vaginal fornix; the plaque extends to both ovaries. Bilateral thickening of the uterosacral ligaments. The colon is faecally loaded. Allowing for the degree of movement artefact, no bowel muscle invasive endometriotic deposit identified. Normal appearance of the UV fold. No bladder muscle invasive deposit. Normal distal ureters. Trace of free fluid within the pelvis. No enlarged pelvic or inguinal lymph nodes. No suspicious focal bone lesion. CONCLUSION: Deep endometriosis, as described." This finally explained all the pain and why my ovaries could not be found. Upon having the MRI results I decided to go with Mr Mabrouk and just pay out of pocket as my insurance wouldn't cover it. I had my preoperative consultation with Mr Mabrouk where he listened to all my concerns and explained the surgery plan, he sent me it in a letter too. The day of my surgery I arrived at the Spire and was well cared for bv all of the staff. When it was time for surgery I had a bit of a panic attack as I am terrified of surgery so I was crying. Mr mabrouk got on my level and assured me that he would take good care of me as did the rest of his team. I woke up from surgery and had a bit of a panic attack again mr mabrouk came to see me and explained he'd come to talk to me tomorrow about my surgery in depth and what he found but he mentioned that he did find endo and that there was some on my diaphragm. I was relatively pain free post surgery as I'd had a lot of pain killers and local anesthetic which I was grateful for. Post surgery I made sure to drink as much Peppermint tea as I could to help the gas pains. I found that if I slept upright it helped the pain. Also if you sleep with the remote for the beds in your hand you can press the buttons to readjust rather than struggle to move yourself so I'd highly recommend it. I was very sick post surgery with vomiting and the nurses at the Spire looked after me so well and eventually found something that worked to stop my nausea. I was so grateful for how kind they were. In the morning I was a lot more with it ans my catheter was starting to annoy me so I made it my mission to drink lots of tea and did pelvic floor exercises to sake my bladder up. It worked a treat and I was able to have it removed and that made me much more comfy. The physio nurse then came to see me and came me some exercises to do and told me to walk if I could every hour or so. I was up and waling as much as I could and it really helped the gas pains. Mr mabrouk then came to see me with another member of the surgical team. He had pictures of my surgery and explained that he had found a lot of endometriosis across organs including bladder and bowel, kissing ovaries that were adhered to my bowels, multiple endometriomas etc. Below is the medical report: Operation: Laparoscopic excision of endometriosis: bilateral ovarian cystectomy; excision of left uteroscaral ligament and pararectal plaque, right uterosacral ligament and retrocervical plaque, bladder peritoneal endometriosis, right pelvic sidewall endometriosis, bilateral ureterolysis, bilateral ovarian suspension, DTC diaphragmatic endometriosis. He showed me the photos and I was in disbelief at how obvious it all seemed and I couldn't believe that medical professionals didn't spot it before. I thank Mr mabrouk for believing and helping me. I was discharged soon after and everything was pretty good in terms of healing. I struggled the most with bladder sensation and rib pain from the ablation and the pulling pain from ovary suspension. My surgery was in early March and now it is May and I've healed well my periods post surgery were the easiest I've had and I don't dread then at all anymore. Mr Maboruk has given me back my life, before surgery my pain was so severe that I could not cope. I am so grateful for his compassion and expertise as I am now living a pretty normal life again.

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