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Written by a patient
6th July 2018


I wish to have a say as a patient badly injured after LVMR which was performed without my knowledge of the inclusion of mesh. In fact none of the procedure was explained to me. (Within a month of the op I had to have a sigmoid colectomy which I believe compromised the original LVMR). I found out mesh was used after I was left in severe pain after apparent failure of the op within the year. After EUA I was told the mesh had snapped and I needed repair. Exactly year later underwent an op which I believed to be a repair. Only to be told they couldn’t find half of the mesh. I have now found out they added a different mesh and unbeknown to me when they carried out STARR surgeons also did post colporrhaphy and anterior Sacrocolpopexy. Following these surgeries I suffered increasing pains, everything felt too tight and I suffered constant blockages. Eventually I had an ileostomy and developed parastomal hernia treated with yet more mesh. Finally I had my colon removed where mesh was found stuck to my small bowel. My health has since declined with constant obstruction episodes and regular bleeds through my stoma and the odd abscess and regular bouts of cystitis. The pains are so severe I cannot walk very far and I’m left housebound. All I have had from the surgeon is denial stating low incidence so have no proper help from my GP. Now after years of denial GP has tried to refer me for proper specialist care sending me to the Oxford removal mdt but his colleague won’t consider me for mesh removal. Unless Rectopexy and other mesh complications are recognised I see no future for me getting any proper healthcare as I know I need the UK specialist Sohir (Suzy) Elneil’s team at UCLH but I can’t travel any more. Along the way my notes went missing 3 times is it a coincidence?

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