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Written by a patient
29th January 2017


Firstly everyone should do their own research and speak with different surgeons before making a final decision. Sometimes, particularly after a cancer diagnosis that can feel overwhelming. I underwent a mastectomy as recommended by this Locum Surgeon. Six months after the surgery I discovered changes in my reconstructed breast. I was diagnosed with around 4cm of residual cancer, which had to be removed in 2 further clearance operations with a Professor of Breast Surgery. I still have residual breast tissue at the front and deep within my reconstructed breast. All of the above was a huge shock to me having undergone a mastectomy just months earlier. I doubt this came as quite such a 'surprise' to this surgeon though, as he had noted, directly after my mastectomy in his operation notes, that some of my breast tissue was very close to my skin. Sadly this was not an observation he felt should be shared with me or the Multi-disciplinary team at the hospital where it is likely that I would have been recommended to undergo post-mastectomy radiotherapy and likely further surgery. Instead I was returned to the usual practice of receiving absolutely no on-going surveillance (mammograms) after such surgery. What could have happened, if I had not continued, to check my reconstructed breast myself at home is still very frightening. After nearly 3 years of further surgery (6 operations down - 2 to go) to correct how I was left and now look. I would strongly suggest that any woman considering this 'complex' surgery ensures they optimise their chances of a successful surgery and a full recovery by seeking out someone who is NOT a locum, who is performing these surgeries very frequently; who is up to date with what informed consent means (sharing all the material risks of surgery and other courses of action even if they are not their recommendation) and who is also ethical in their approach to sharing the reality of their work and skills and any issues encountered during treatment. And perhaps ensures that the pathological services they rely on are fit for purpose.

Trust
Listening
Recommend